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Your most recent question was: "I Am So Worried About My Son He Has Mild/moderate HP Now Diagnosed With VWD If He Has An Internal Bleed How Will I Know?" Let me know if you need further clarification… read more
I Am So Worried About My Son He Has Mild/moderate HP Now Diagnosed With VWD If He Has An Internal Bleed How Will I Know?
Internal bleeding in children with hemophilia or von Willebrand disease (VWD) can show signs like joint swelling, pain, or tightness, especially in the shoulders, hips, ankles, or knees. Watch for… read more
What Advice Are You Grateful To Share With Others About Hemophilia?
Let your kids be kids. Let them push their physical limits. Let them learn what their limits are at a young age, when it is safer; than waiting til they are off on their own and may not have the… read more
What’s One Thing About Hemophilia That People Rarely Discuss But Should?
Safety.
What Have You Found Helpful In Easing Pain Related To Hemophilia?
I think the most important thing is to find a treatment plan that gives you ongoing bleed protection to prevent bleeds from adding to already existing pain from damage caused by prior bleeds. There… read more
What Tips Do You Have For Staying Active While Dealing With Bleeds?
I have not done that.
What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃
Do You Follow A Specific Diet To Help With Hemophilia?
My family doesn’t follow a diet , but one thing that we do to help boost our hemoglobin and hematicrit from bleeding episodes is to make jello any flavor gelatin. Make as directed but do not… read more
Which Hemophilia Symptom Surprised You The Most?
While most of my bleeds were pretty closely related in regards to the pain level, but the two that surprised me the most were the shoulder and groin bleeds. When I had a shoulder bleed flare up, I… read more
Hasanyone Ever Experienced A Surgeon That Has No Concern Regarding Hemophiliac
I have not had my hemophilia discounted by most respectable physicians. When having a recent dental procedure, the doctor responded that the hemophilia would not be an issues with a scheduled Root… read more
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