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I Don'know If I Fit In. I Have Factor 5,8 And 10
I only take coumadin, i am hearing different treatments from reading others comments. I don't know that i have a lot of questions. I will as i go on, i just want to fit in. I have a hemotologist at the U of M Minnesota. My Dr. Is suppose to specialize in these types of blood disorders. But he has said to me these 3 together are rare. I also have Stills disease which is an autoimmune disease. It is also rare. I was a nurse and a Social Worker very busy and needed. Now i am homebound and no one in… read more
I also have three different disorders: 2, 5, and 13.
Von Willie Brands Disease And Pregnancy
Have any women on here gotten pregnant with vonwillie brands disease... I'm not pregnant that I know of and have a few questions
Well, I've had a LOT of pregnancies...and kids...I did have one pregnancy where I continued to have periods and did not test +, even though I was CLEARLY pregnant (three months when I went to the… read more
Fusing Knee With Out Surgery Need Info
I'm 39 hemo sever 8 with inhibitor no one wants to do knee replacement bone on bone. Has anyone done a bone fusin with out surgery letting the bones grow together basically i would wear a cast for 12 weeks and then that be it. Has anyone done that or know anyone that has
I don't have an inhibitor but I had a total knee replacement done on both knees. A revision on the first one I had done. Very painful but so is bone on bone. It has been a year almost since my… read more
Elbow Pain - Older Haemophiliacs
Are there any older guys with haemophilia that are experiencing chronic pain in both elbows. Right hand small finger has pins and needles feeling?
I have pins and needles in my small finger as well as the next. Xrays shows that I have a nerve caught in the elbow joint. Got used to it after an few years. Now I have Carpal tunnel syndrome as well.
Where Can I Get Help With Getting Factor 8 If You Do Not Have Insurance Or Medicaid
My son 21 has no insurance and disability keeps denying him and so does Medicaid . we can't afford factor 8 for his bleeds . he has to drive an hour or more to another state just to get a factor 8 shot and that's an emergency room visit and Bill every time. Can we get help with getting factor 8 for him to have at home . please help me
Call the manufacturer they can help.
Where Can I Get Help With Getting Factor 8 If You Do Not Have Insurance Or Medicaid
Does Any One Have Factor Five Leiden And If So Does Your Body Respond To Pain Medication?
I have Factor V Lieben and on Percocet for pain. I also have nerve burns done every few months to my left leg where I’ve had 3 clot. I feel every single clot. I also had to have the IVC filter… read more
Insomnia
Does anyone else have issue with Insomnia with there disorder and if so how do you deal with it?
My daughter had a severe sleep disorder that was linked to VWD because of low ferritin. Has your ferritin level been checked? My daughter takes Requip (to help with restless limb movement) and also… read more
Physical Therapy
I do pilates 2-3 days a week. I also walk 3 days a week. I find this has helped keep the pain in my joints, and all around well-being more positive. My question is: Is this too much?
If you enjoy it, you are not in pain and your levels are good I don't see why it would be too much. I think the stretching walking and strength training helps the joints and muscles
Doctor Hemophiliac
Who recommend me a good adult doctor for hemophilia in San Antonio my Sinn has been seeing by the children's hospital but is the children's clinic and we are looking for an adult hematology doctor who recommend a good one
I would research you local hemophilia chapter or National hemophilia association or American Hemophilia Association they can recommend and HTC hemophilia treatment center. The hemotology does not… read more
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