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Real members of MyHaemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Do Beverages With Caffeine Affect Your Hemophilia?

By A MyHaemophiliaTeam Member 2 answers

Are You Frustrated With Finding Effective Treatments For Hemophilia?

By A MyHaemophiliaTeam Member 1 answer

Could You Share Any Dietary Changes And Tips That Have Helped With Hemophilia?

By A MyHaemophiliaTeam Member 2 answers

How Do You Prep For Physical Activities To Avoid Injuries? 🏃‍♂️⚠️

By A MyHaemophiliaTeam Member 2 answers
200 questions

What's On Your Holiday Wish List That Could Improve Your Life With Hemophilia?

A MyHaemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHaemophiliaTeam Member

I'm with you on that ,sometimes,I get looked at like being abused or drug abuse and I dont

December 19, 2023

Hello I Am Trying To Find Out Exactly What Thrombocydapenia Is

A MyHaemophiliaTeam Member asked a question 💭
Walnut, MS
A MyHaemophiliaTeam Member

Thrombocytopenia is a condition that occurs when the platelet count in your blood is too low. Platelets are tiny blood cells that are made in the bone marrow from larger cells. When you are injured… read more

November 28, 2023

What Aspects Of Hemophilia Are You Grateful For And Worried About Lately?

A MyHaemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHaemophiliaTeam Member

I'm grateful I survived the many times I came close to death since I was 5 yo in 1949. I don't worry about it unless a doctor insists I do some procedure I know would be risky...then I'm adamant about… read more

November 22, 2023

Why You Need To Think About What You Did Last Summer

A MyHaemophiliaTeam Member asked a question 💭
Chicago Heights, IL

What you doing for the day

A MyHaemophiliaTeam Member

Going on holiday

November 21, 2023

Are There Ways To Lessen Fatigue That Comes With Von Willebrand Disease?

A MyHaemophiliaTeam Member asked a question 💭
Hamburg, PA

I have von willebrand disease. A lot of days I feel very tired and like a bus hit me. I also have pain in my joints and bones when I feel fatigued. The only way I can explain it is feeling like I have the flu. Are there any ways or tips to lessen my fatigue so I don’t feel so ill?

A MyHaemophiliaTeam Member

I feel the same way. I find that making sure I drink enough water and keep moving as much as possible even though I don’t want to

November 26, 2023

If Possible, Have Your Child Attend A Hemophilia Summer Camp To Meet Others With Our Condition, Learn Basic Facts And Build Community..

A MyHaemophiliaTeam Member asked a question 💭
Williamston, MI

Nowadays in countries with advanced medical care, many hemophiliacs never learn enough about our condition--about self-care and prevention of injury. It is critical that youngsters learn to avoid joint problems that can linger a life-time and cause chronic pain, plus the reasons for and importance of treatment. Not every young man needs to play tackle football or climb mountains. Encourage reading and development of positive social skills, things we all need in life.

The Benefits Of Medical Marijuana

A MyHaemophiliaTeam Member asked a question 💭
Durham, NC

I've been reading a lot about the benefits of medical marijuana with people with hemophilia. Can anyone give me any insight

A MyHaemophiliaTeam Member

Thanks !!

October 28, 2023

The Benefits Of Medical Marijuana

A MyHaemophiliaTeam Member asked a question 💭
Durham, NC

I've been reading a lot about the benefits of medical marijuana with people with hemophilia. Can anyone give me any insight

How Do You Cope With Seasonal Changes And Hemophilia?

A MyHaemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHaemophiliaTeam Member

Damp, cold weather badly inflames my joint pain, a life-long phenomenon experienced living in Michigan, linked to nearly seven decades of joint bleeding. I take Meloxicam, an NSAID prescription… read more

October 23, 2023 (edited)

What Hemophilia Symptoms Do You Have That You Didn’t Expect?

A MyHaemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHaemophiliaTeam Member

Symptoms I didn't expect? I've seen most everything our bleeding disorders can throw at us from birth to death, including joint destruction and viral contamination of the blood supply with tragic… read more

September 26, 2023
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