Connect with others who understand.

Sign up Log in
About MyHaemophiliaTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Real members of MyHaemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What’s Your Go-to Routine For Joint Health? 🦵🧘‍♂️

By A MyHaemophiliaTeam Member 1 answer

I Hope Everyone Has Had A Good Day!

By A MyHaemophiliaTeam Member

Do You Know Of A Dental Surgeon In Michigan That Will Work With Hemophilla

By A MyHaemophiliaTeam Member 1 answer

Are You Frustrated With Finding Effective Treatments For Hemophilia?

By A MyHaemophiliaTeam Member 1 answer
200 questions

Is Fish Oil Supplement Okay For Factor IX Deficient? I've Read That Bleeding Could Be A Side Effect.

A MyHaemophiliaTeam Member asked a question 💭
Casa Grande, AZ

Super, I Have A Good Day, A Good Week

A MyHaemophiliaTeam Member asked a question 💭

I Am A 62 Year Old Senior Who Needs To Have 13 Teeth Removed....

A MyHaemophiliaTeam Member asked a question 💭
Lake Wales, FL

I am looking for an oral surgeon familiar with Hemophilia in the Titusville/Orlando, Florida. I am a Hemophlia patient (Factor 11) def. and have a tendency to bleed alot.. My dentist said I would need a transfusion before, and one unit after the procedure. So we are talking about a two-three day hospital trip for me. So far, I have no recommendations for anyone close by. Not sure what to do, as the work needs to be done asap because of constant infections.

Any advise would be appreciated… read more

A MyHaemophiliaTeam Member

You absolutely need to contact the closest Hemophilia treatment center. I would not ever do oral surgery without the their involvement. I have had 3 surgeries all went well. I have Von Willebrands.

January 28

Can Any Of You Recommend A Great Hematologist In The San Diego Area?

A MyHaemophiliaTeam Member asked a question 💭
Santa Clarita, CA
A MyHaemophiliaTeam Member

Check with the Hemophilia Treatment Center at University of San Diego Medical Center

March 19, 2023

My Daughter Is 12 And Has Type 1 Von Willebrands. Anyone Else Have Young Ones With That?

A MyHaemophiliaTeam Member asked a question 💭
Callery, PA

Anyone else have young kiddos with this?

A MyHaemophiliaTeam Member

My daughter has Type 1 we haven’t had any serious incidents thank God. I’m type 3 and it’s a whole different world. My niece nephew sister and mom all have type one and they are all relatively normal… read more

December 21, 2022

Joint Bleeds

A MyHaemophiliaTeam Member asked a question 💭
Sturgeon Bay, WI

I have von Willebrands disease. I really don’t know much about it. I was told its a relatively minor case but that’sall i know. I don’t know what to expect with this disease and have a lot of body pain and headaches. I’m not sure if any of this is from vwd or if it’smy other conditions.

A MyHaemophiliaTeam Member

I have VWD and have always been told it’s a Factor VIII deficiency.

April 29, 2023

Does Anyone Else Have Non Itchy Red/purple Dots. Always There.

A MyHaemophiliaTeam Member asked a question 💭
Queen Creek, AZ

Hi, I have VWD, I have had red and purple dots for at least 15 yrs. Only on my abdomen and a few on chest. There are tons of them. Some very very tiny, a few look like cherry animolas spell?? A few raised. Most flat and never itch. Never go away completely. Sometimes they seem much worse or more prevalent than other times. Like if i take ibuprofen, which I was told not to but can't help it sometimes. My hematalogist always said its from the VWD. But that was 15 yrs ago. And i can't remember the… read more

A MyHaemophiliaTeam Member

Keep your feet elevated.

October 5, 2022

Baby Clotting Each Time Blood Is Drawn

A MyHaemophiliaTeam Member asked a question 💭
Maryland Line, MD

My son hasn’t been tested for Factor V Leiden or any other clotting disorder... well he has been...but it was after a blood transfusion. 🙄

When he was 2 months the hospital struggled to get his PICC line in.. (kept clotting)

Today he is 10 months and needed to have blood work done.. but they couldn’t get a lot because he kept clotting..

I guess my question is... is this a sign that he would most likely have a clotting disorder?

TIA

A MyHaemophiliaTeam Member

Better to find a hematologist to ask that question

September 17, 2020

Intching, Pins And Needles On Face And Head

A MyHaemophiliaTeam Member asked a question 💭
Anaheim, CA

I’ve been having pins and needles and itching on my face and head from taking norco and methadone to manage my pain. Doesn’t anyone have a way to cope with it or any other information. I’ve tried other pain killers and can’t tolerate them as well as I do the opiates. I also smoke pot at night to deal with neuropathy and anxiety etc.

A MyHaemophiliaTeam Member

Certainly sounds very similar to my own, however, I have hemophilia factor VIII deficiency, severe...long winded way of saying that I have had problem which have resulted in my left knee being fused… read more

September 19, 2020

Whats The Best Healthcare Coverage Plan For Hemophiliacs If You Are Not Employed?

A MyHaemophiliaTeam Member asked a question 💭
Lynchburg, VA

My current situation is that I am 28 years old and am about to start medical school in a state outside my own (I am a Minnesota resident and will be going to Virginia for school). Since I am over 26, I can not enroll under my parents and I also will not be working and the school does not provide insurance. This leaves me with finding private healthcare coverage. Has anyone else dealt with a situation similar to this? I am afraid of the costs and the difficulty of living out-of-state which might… read more

A MyHaemophiliaTeam Member

Check for MarketPlace plans under the Affordable Care Act

March 19, 2023
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in