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Has Anyone Heard Or Been Told That You Cannot Take Any Omega Oil Supplements If A Vonwillebrands Patient ?
I have been told that taking omega oil supplements could be very dangerous as I have Vonwillebrands. Has anyone else heard or been told this?
I was told by my daughters’ Hematologist that they couldn’t have anything with fish oil because it could thin their blood. Their bleeding disorder isn’t Vonwillebrands, but I would assume this would… read more
How Do You Deal With People Overreacting To Bruises?
I bruise extremely easy with my May-Hegglin. Many times I have no clue what even caused the bruise. I like to wear skirts, dresses and shorts, but lately I dread wearing them because of my bruises and the reaction I get from others. I know I shouldn't care, but I don't want people to think I am abused either.
Be honest with people about your condition and how it causes bruising, often without you knowing the cause.
Do Any Of You With Vwd Have Extreme Fatigue,joint Pain And Burning?
I can't seem to get enough sleep anymore. Somedays my joints hurt so bad I can hardly move and I am experiencing a terrible burning sensation around different joints when I move them. The most recent one is next to certain areas along my spine. My VWD is mild but this all worries me since it is happening more frequently.
People with von Willebrand disease (VWD) can experience symptoms such as fatigue, joint pain, and burning sensations. Fatigue can be linked to anemia, which is common in bleeding disorders like VWD… read more
Have Any Women With Mild Hemophilia A (or "symptomatic Carrier") Had Issues With Bruising With Mammogram?
I am scheduled for diagnostic mammogram. I have factor VIII levels in the low 40% and tend to bruise easily. Worried about the mammogram causing significant bruising so am wondering about the experiences of others.
I’ve had a few and never had a problem
Can Anyone Tell Me About The Drug Wilate Used To Treat VWD
I take It. It’s factor 8 and has less things in it to react to is what I was told. I don’t feel as sick after taking it. Not sure what else you wanna know about it.
Surgery For Hemophilia Carriers
Has anyone who is a known hemophilia carrier with 50% factor levels had surgery.
My sister is due to have a knee replacement. What was your experience and what did you have to do pre surgery and post op?
Please share your experiences. Thanks
Your sister should coordinate her care with surgeon and Hemophilia Treatment Center closest to her. It may be wise to consider factor replacement therapy or at very leat Stimate.
Big Bruise To Forehead
Hi, my 3 year old son has moderate hemophilia, level 3.
He had a nasty bruise on his forehead that has swelled up to a golf ball size, and has rebled a little.
Apart from trans acid, is there anything any of you guys have used to stop the bleeding and support recovery?
We are very worried
Thanks so much
David
For a big bruise on the forehead, especially in someone with hemophilia or a bleeding disorder, it's important to take specific steps:
1. Rest: Avoid using the injured area
2. Ice: Apply a cold… read more
What Could Be Wrong With Me?
I noticed some petechiae spots on my abdomen and legs in May. The ones on my abdomen started to spread and get lighter in color in the center. One doctor said that I had ringworm. I started using Lotramin. The spots continued to spread. I went to see a different doctor. He thought that it might be Lupus, but my ANA was negative. My aPTT was 34, which was said to be high. My Factor VIII Activity was 37%. My von Willebrand Factor (vWF) Ag was 81%, and my vWF Activity was 63%. The doctor ordered… read more
Still no answers. The hematologist is sending me to a rheumatologist now.
Blood Types?
I am curious, my husband has O negative blood and his friend also has negative blood. These are the only 2 hemophiliacs I know. I was wondering if there is a correlation with negative blood and hemophilia? Also, my husband has a MTHFR mutation, which makes his body less able to detox, among other things. I do not know about his friend’s status on this, but we found out through 23&me and genetic genie. Does anyone else know their status as far as blood type and/or MTHFR mutation, specifically 677… read more
Interesting question but I don't believe there is any connection between RH factor and hereditary bleeding disorders. Like you, I am O-neg. but that only means we are universal blood donors (like… read more
Trying To Find The Answer
I am protein s deficiency and my levels are almost non existent
I am also protein c deficienc and it is almost unable to be detected.
I have been on blood thinners since September of 2011 I have had a p.e. and 2 small anyruisum. I have been trying to find out what this diagnosis means . I will take blood thinners for the rest of my life. I just can't get anyone to fully explain it to me
Could you please specify your question or the information you are looking for? This will help me provide a detailed and accurate response based on the knowledge base provided.
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