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My Nose Bleed Lasted Hours, What Works Best? VWD

A MyHaemophiliaTeam Member asked a question 💭
Medford, OR

I regularly get them on my left side and have had it cauterized three times. I use a Tampon to help for a clot and stop it but this was a five tampon event in my nose over just two hrs. I also just let it run in the sink for awhile out of frustration! Should I use the DDAVP NOSE spray in this case??

April 11, 2018
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A MyHaemophiliaTeam Member

I think it does but it is very expensive to buy even with insurance! I’m guessing it may even need a prior authorization from your Hematologist or PCP. I would definitely see if they have a physicians sample available too!

October 25, 2018
A MyHaemophiliaTeam Member

Is that over the counter ?

March 28, 2022
A MyHaemophiliaTeam Member

Nasal QR is an over the counter Alternative and cheaper than ddavp

November 25, 2018
A MyHaemophiliaTeam Member

Does this stuff really work? I was in the ER last week with my first unstoppable nosebleed. I packed my nose and headed for ER. by the time I got there, it was coming out of my mouth. I must have been a real sight. Blood all down the front of me. Needless to say, they got me in quick and took care of me right away.

October 25, 2018
A MyHaemophiliaTeam Member
October 25, 2018

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