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How Do You Cope With Seasonal Changes And Hemophilia?

A MyHaemophiliaTeam Member asked a question 💭
San Francisco, CA
October 23, 2023
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A MyHaemophiliaTeam Member

Damp, cold weather badly inflames my joint pain, a life-long phenomenon experienced living in Michigan, linked to nearly seven decades of joint bleeding. I take Meloxicam, an NSAID prescription medication that causes fewer problems with platelet function and coagulation than ibuprofen, plus Tylenol and instant-release morphine after decades of use and development of physical dependence on opiates for chronic pain in all weight-bearing joints. I have had several joint replacements but am no longer willing to undergo surgery because of pain management issues. I could theoretically move to a warm dry climate but have family obligations here. I am unable to do much physical activity and have resolved to simply endure, offer advice...and complain, as I'm doing now. My only other comment is to be grateful hemophilia treatment has improved so much recently and that HIV/Hepatitis is no longer the grave risk it was when I was infected in 1978 (determined with log sheets and notices from pharmaceutical companies of contaminated lot numbers, and hospitalization for symptoms of seroconversion following knee replacement). We lost thousands of good people to that, caused by big pharma negligence and greed. (Infusing factor in the 1970s also made my mouth taste like dirty socks...I'm grateful they cleaned the stuff up for those and other reasons).

October 23, 2023 (edited)
A MyHaemophiliaTeam Member

With Cryoglobulinemia you keep warm at all times. I've learned I can't be under 72 degrees for long periods so I adjust for that and in cold weather wear extra layers of clothes plus carry a blanket and emergency stuff for when I do have to go out.

October 23, 2023

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