What Advice Are You Grateful To Share With Others About Hemophilia?
Let your kids be kids. Let them push their physical limits. Let them learn what their limits are at a young age, when it is safer; than waiting til they are off on their own and may not have the same support system. I appreciate my parents for not sheltering me, being a Hemophilia severe factor 8 child. They let me do jumps on my bike, not wear a bicycle helmet, play sports, etc. When you learn your limitations on your own, it carries with you for life. When your parents create too restrictive limits on your physical activities; you are more prone to push past them, once you have the freedom to do so; “or” you will never push them, and will create a very sheltered life for yourself, based on your parents preconceptions and fears. Sure they will get bleeds; but a few extra bleeds now, are less serious than possible bleeds they will get behind your back or when they are on their own and no longer have you by their side for support. Sure, give them recommendations and provide precautions; but don’t push it to a point where you create fear in your child, to explore their physical limitations. Do I regret some things I did as a kid? Sure; but there are not many I regret; because everything I did, taught me what I can expect from my body, when my choices “could” lead to more serious circumstances.
With that said…. Enjoy your hemo child and be a participant in their activities when asked. Every new experience for them; can be a learning experience for both them and yourself.
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