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Elbow Pain - Older Haemophiliacs

A MyHaemophiliaTeam Member asked a question 💭
Durban, ZA

Are there any older guys with haemophilia that are experiencing chronic pain in both elbows. Right hand small finger has pins and needles feeling?

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A MyHaemophiliaTeam Member

I have pins and needles in my small finger as well as the next. Xrays shows that I have a nerve caught in the elbow joint. Got used to it after an few years. Now I have Carpal tunnel syndrome as well.

Lawyer For SSI Or Ssd ?

A MyHaemophiliaTeam Member asked a question 💭
Columbia, SC

Received SSI until age of 26 then income interfere with it since 2006 been replying use all my work credits and been turn down for SSI they stated my condition has improved how do I go about getting lawyer or help getting this back low income no health insurance has really caused my condition to worsen

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A MyHaemophiliaTeam Member

SSI is for poor people, SSDI is for people too disabled to work. They both have income and asset requirements. Like you can have two cars or $10,000 in the bank etc. the hemo clinic found me a lawyer… read more

Fusing Knee With Out Surgery Need Info

A MyHaemophiliaTeam Member asked a question 💭
Davis, OK

I'm 39 hemo sever 8 with inhibitor no one wants to do knee replacement bone on bone. Has anyone done a bone fusin with out surgery letting the bones grow together basically i would wear a cast for 12 weeks and then that be it. Has anyone done that or know anyone that has

A MyHaemophiliaTeam Member

I don't have an inhibitor but I had a total knee replacement done on both knees. A revision on the first one I had done. Very painful but so is bone on bone. It has been a year almost since my… read more

I Am Pregnant And Have A Factor 7 Deficiency. Any Factor 7 Ladies Have Advice For A Safe Pregnancy And Delivery?

A MyHaemophiliaTeam Member asked a question 💭
Orlando, FL
A MyHaemophiliaTeam Member

You are very welcome! I did have a natural birth but the pain was rough, they wouldn’t give me anything for the contractions. Also, for post birth, make sure they do a follow up on your levels. My… read more

How Do I Discourage My 17 Yro. Severe Hemo. A Son, Not To Buy A Motorcycle?

A MyHaemophiliaTeam Member asked a question 💭
Pinellas Park, FL

.Hi, My 17 yro. Severe A son, is determined to buy a motorcycle. He has written and explained a 3 page report to me and his dad the reasons why he should be allowed to get a motorcycle. To me, this just sounds like the craziest idea in the world.--No exceptions!---A no brainer. But trying to convince my son is a totally different argument
This would not happen right away, but probably within the next 6 to 8 mos
I am searching for help from the "older" more experienced people,-- who may… read more

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A MyHaemophiliaTeam Member

I just joined this sight and I saw your post from over 2 years ago. Having had motorcycles since I was 10 made me curious of your outcome. I am Severe A also. Hope all is well. Glenn