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Questions & Answers

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Real members of MyHaemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do Any Of You Lovely People Suffer From Fatigue?

By A MyHaemophiliaTeam Member 1 answer

Anyone In Here From Close To Madison, Indiana.

By A MyHaemophiliaTeam Member 1 answer

Hi Team, This MyHemophiliaTeam What Kind Of Purpose Is Stated, For Helping The Member With Hemophilia ?

By A MyHaemophiliaTeam Member

How Do Beverages With Caffeine Affect Your Hemophilia?

By A MyHaemophiliaTeam Member 2 answers
200 questions

What Have You Found Helpful In Easing Pain Related To Hemophilia?

A MyHaemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHaemophiliaTeam Member

I think the most important thing is to find a treatment plan that gives you ongoing bleed protection to prevent bleeds from adding to already existing pain from damage caused by prior bleeds. There… read more

3 days ago

What Tips Do You Have For Staying Active While Dealing With Bleeds?

A MyHaemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHaemophiliaTeam Member

I have hobbies that start at drawing or using the iPad in bed, depending on bleed location play guitar, if ok to work on computer. I do photography of birds, butterflies and etc… in my backyard. I… read more

October 29

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

A MyHaemophiliaTeam Member asked a question 💭
San Francisco, CA

Do You Follow A Specific Diet To Help With Hemophilia?

A MyHaemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHaemophiliaTeam Member

My family doesn’t follow a diet , but one thing that we do to help boost our hemoglobin and hematicrit from bleeding episodes is to make jello any flavor gelatin. Make as directed but do not… read more

September 23

Which Hemophilia Symptom Surprised You The Most?

A MyHaemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHaemophiliaTeam Member

While most of my bleeds were pretty closely related in regards to the pain level, but the two that surprised me the most were the shoulder and groin bleeds. When I had a shoulder bleed flare up, I… read more

August 19

Hasanyone Ever Experienced A Surgeon That Has No Concern Regarding Hemophiliac

A MyHaemophiliaTeam Member asked a question 💭
Miami, OK
A MyHaemophiliaTeam Member

I have not had my hemophilia discounted by most respectable physicians. When having a recent dental procedure, the doctor responded that the hemophilia would not be an issues with a scheduled Root… read more

August 19

What’s Your Go-to Routine For Joint Health? 🦵🧘‍♂️

A MyHaemophiliaTeam Member asked a question 💭
San Francisco, CA

Share your routines for maintaining joint health, such as exercises, stretches, or therapies that have helped you.

Comment below with your joint health routines and let’s keep each other moving! 💬

Read more on the ways to protect your joints with severe Hemophilia: https://www.myhemophiliateam.com/resources/ways...

7 Ways To Protect Your Joints With Severe Hemophilia | MyHemophiliaTeam
7 Ways To Protect Your Joints With Severe Hemophilia | MyHemophiliaTeam
A MyHaemophiliaTeam Member

Walking and bike riding are my main cardio activities. I also do calisthenics such as various types of pushups, as well as using resistance bands to help maintain muscle strength, which in turn helps… read more

August 21

What Are Your Top Tips For Dealing With Hemophilia In The Heat?

A MyHaemophiliaTeam Member asked a question 💭
San Francisco, CA

Any Updates News On Gene Therapy On Hemophilia A ( Factor 8 Deficiency)?

A MyHaemophiliaTeam Member asked a question 💭
Orlando, FL
A MyHaemophiliaTeam Member

Certainly! Here are some updates on gene therapy for Hemophilia A (factor VIII deficiency) based on the knowledge base:

- Breakthrough Results: A recent gene therapy trial showed promising results… read more

July 21

Are You Frustrated With Finding Effective Treatments For Hemophilia?

A MyHaemophiliaTeam Member asked a question 💭
San Francisco, CA
A MyHaemophiliaTeam Member

I understand the question, but what has not been effective?

June 17
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