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Being Given Advate After A Procedure And You Have Von Willebrand's Type 2b

A MyHaemophiliaTeam Member asked a question 💭
Middletown, NJ

My son, like myself, has von Willebrand's type 2b. He is having his wisdom teeth removed and is going to take Amicar and Vonvendi. Weird thing is advate is also on the list. Anyone else with vW been given this? It is usually given to hemophiliacs

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A MyHaemophiliaTeam Member

I've been given DDAVP

I Have Von Willebrand

A MyHaemophiliaTeam Member asked a question 💭
Macomb, MI

Does anyone have chronic pain I have it in neck back hips knees and ankles already have had 1 total knee and 1 total hip replacement

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A MyHaemophiliaTeam Member

Von Willebrand Disease (VWD) is a bleeding disorder caused by a deficiency or dysfunction of the von Willebrand factor (VWF), a protein that helps blood clot. Here are some key points about VWD:

-… read more

Surgery For Hemophilia Carriers

A MyHaemophiliaTeam Member asked a question 💭
Durban, ZA

Has anyone who is a known hemophilia carrier with 50% factor levels had surgery.
My sister is due to have a knee replacement. What was your experience and what did you have to do pre surgery and post op?
Please share your experiences. Thanks

A MyHaemophiliaTeam Member

Your sister should coordinate her care with surgeon and Hemophilia Treatment Center closest to her. It may be wise to consider factor replacement therapy or at very leat Stimate.

My Nose Bleed Lasted Hours, What Works Best? VWD

A MyHaemophiliaTeam Member asked a question 💭
Medford, OR

I regularly get them on my left side and have had it cauterized three times. I use a Tampon to help for a clot and stop it but this was a five tampon event in my nose over just two hrs. I also just let it run in the sink for awhile out of frustration! Should I use the DDAVP NOSE spray in this case??

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A MyHaemophiliaTeam Member

Is that over the counter ?